From last week’s reader response comment section, which is replete with good material and you should totally go read if you haven’t yet:
On a similar note, anyone have issues with missing too much work because of staying home with their asthma child? My boss has said I need to find “alternate child care” for when my DD is sick.
- SnjMom
Sara already left this advice:
If you are in the US, check and see where staying home with an asthmatic child falls under the FMLA…they may not have to PAY you for all the time you need to take, but they may not be able to fire you. It may depend on several factors…but you may have legal protection…but there may be hoops you have to jump through first.
Now, I’ve been lucky. I never faced the sick day problem.
I’ve been living with a different career-related problem altogether!
(Isn’t childhood chronic illness fun?)
Let’s stroll through my work/life/parenthood/asthma balance dilemma in pictures, shall we?
Motherhood started unconventionally for me. We had no immediate plans for a baby although I’d always wanted children someday, no financial stability, no health insurance, even. There was me, a new college diploma, a boyfriend of eight months who would later become Mr. Asthma Mom, and a positive home pregnancy test. Some months later and almost six weeks before her due date, there was AG:

See? I’m about 12 years-old here.
Actually, I was 23 but still:
Total. Amateur.
AG was an easy baby despite the lungs, though. Look how cute:

She attended a small, licensed daycare home while I worked in development/fundraising for a private school in south Florida. What with my extra days off because of the school schedule, the relatively low contagion risk of an in-home daycare, and no other children yet, Mr. Asthma Mom and I were able to juggle our schedules to accommodate AG’s health. I mean, sure, she seemed to catch every damn illness going around and hung unto them for weeks at a time (read: “started flaring and we didn’t know it”), but we basically just toughed it out and used our sick days for her rather than ourselves. We were young; we didn’t get sick that often.
Point is, I left my job when AG reached 16 months because I wanted to parent full-time for awhile, not because of her health or because of employer/absence friction. My daughter would remain undiagnosed for almost a year afterwards, in fact.
Then we did this:

We actually planned for our second baby, and AG and her Steadfast Sidekick have been inseparable ever since.
I won’t say those years were easy – they weren’t, not even close. On top of AG’s lung and digestive health spiraling downwards until we got them under control, we had massive debt leftover from college. We had no money. We never went on vacation. We couldn’t afford the extras and rarely spent anything on ourselves.
But I’m very, very grateful that staying home to raise our daughters and safeguard and boost AG’s health existed as an option for me at all, that it meant paying student loans off later rather than sooner and giving up just the luxuries, not the necessities. Those were choices I made and don’t regret and I remind myself, daily, that at least I had that choice at all.
My Job Search That Will Never End? That’s the collateral damage I have to live with, I guess.
All the time, I do try to keep that gratefulness in the front of my brain, even as this path back to my career turns into a long, slow slog of a journey, and I feel like I will apply for good positions and not get them forever, like some weird episode of the Twilight Zone.
Ridiculous, I know, but I default to pessimism.
Anyway, back to the story at hand:
When AG’s health improved, moving away from the Tampa Bay area and back to the Florida Panhandle seemed like a good idea at the time.
My family’s there, for one. And the beach is pretty:

It is, however, a spectacularly bad region to look for a job after a temporary sojourn away unless you are A) part of the Good ‘Ole Boy network because that part of Florida is not Florida, it’s small-town Deep South, B) a teacher, which I am not, or C) the daughter of the owner of a local business where you can work, which I also am not.
I started freelancing, and after three years we moved to Colorado. We’re staying here for good:

Chronic illness affects the whole family. It’s a game changer in the worst way. Its reverberations can alter the course of a life.
And there is always a sacrifice to make.
AG’s very problematic and persistent asthma determined mine, but so did her age. And her sister’s age and my age and the nature of my husband’s career and a million other considerations unique to me and different for you.
Are you missing work like the reader above?
Are you struggling to get your career back like me?
How are you handling the work/life balance (or lack of balance)?

I’m not working…at least not in any real sense. I am on the sub list for our local school district. Between two children who both have chronic issues, (M’s asthma and A has chronic, chemical depression and ADHD) we have doctor’s appointments 15 times a year…and that’s just when they are healthy. Add the inevitable illnesses in there, and WOW, I’d be fired from a traditional job within 6 months. I AM lucky, that my husband works nights, so if one of my kids has a run of the mill cold or sinus infection or something, he is perfectly capable of taking care of them, and I can go if I get called in…however…I don’t know about any of the other mom’s here…I’m just not comfortable handing off doctor’s appointments, and medical tests to my husband. I go to all the tests, all the hospital appointments, all the specialist appointments, etc. I’m just not comfortable with not being there.
I’m sure that if I had a traditional job, I would find out about the FMLA, and see if coming in late, or leaving early for appointments could be accommodated…but for right now, taking care of my daughters is pretty much my full time job.
If you ever find that balance that you’re looking for, please let me know…because I often feel rather UNbalanced.
I will have to find out about FMLA. Since it’s just me and my DD, I don’t have any back up child care. When my DD was a baby I missed alot of work because she was in and out of the hospital. I moved to another state to live with my parents so I could have some help. A few years ago we moved (better schools, better live, etc) but my parents havent been able to sell their house yet so it’s no back up care again.
My boss likes to bring up my being a single mom alot even though others take off time for “family emergencies”.
I’m looking forward to hearing how others have dealt with taking time off work to stay home with their AG or AB (asthma boy).
Sara–Know just what you mean re: probably getting fired. With us, too, childcare for both kids was cost-prohibitive at the time. Now AG’s health is stable, I live near my in-laws, and both girls are in school….but we’re in a recession. I can’t win!
SnjMom–I’m no expert, but…is it legal for your boss even to bring your family circumstances up? Again, I’m just guessing here & I don’t know your full situation, but it seems like you could make a case for discrimination. Your marital status shouldn’t even be part of the discussion! Maybe someone out there with a legal background has more information than me….
SnjMom – I am almost positive that making allusions to your marital status and creating an uncomfortable work environment because missed medical time are violations of your rights as an employee. They can all fall under the definition of ‘hostile work environment’ and are not only something you should be able to take to human resources – but could also be prosecutable. Make sure you document every appointment from here on out and save anything that is said to you. Especially if the lout is dumb enough to write it in an e-mail. I’m no lawyer but I have a friend who is in employment law. He did mentioned it was possible you were experiencing harassment and gender discrimination. He says it may be a good idea to consult a local attorney. Many will initially consult for free.
SnjMom: I totally know where you’re at (not literally)! I’m a single mom & i work full time. I work in a small office, so when it is absolutely necessary i am allowed to bring my AG in for a most of the day. I have had a lot of those comments from one of my supervisors though in the form of: “I’ve never known of any other kid to be this sick so often.” The stress of being the sole financial provider is already so overwhelming and adding her health problems to it sort of, i guess, exacerbated it to the point of insanity. I focus more on worrying about her health now, since that feels like the biggest issue. I am in a fairly constant state of high-adrenaline anxiety, but there’s not much that can be done for that. My parents are both disabled and can’t help and the only other family members who would be willing to help have cats (one of her major asthma triggers) which leaves no back-up. IT SUCKS! But it is what it is. All of you here are pretty much my only support network, since i have no friends around here anymore. People often look at me like i have numerous heads when i tell them i literally spend all of my time working or with my AG. But she’s a trooper. She’s so brave through all of this, and if she can smile through the coughing, pneumonia and surgeries, how can i not handle my part with at least half of her bravery?
I love that my mom didn’t work when I was young and going through this and no one needed to worry about who would take care of me. (My mom now works as a park naturalist and is happy as a clam) What I did not love is that as a result my mom always was in charge and my dad was left out of the loop. To this day he knows way less about it than my mom and it’s hard for me to communicate to him about my health. Oh well I’m still a very lucky fish and we got through it!!
Danielle, I’m so guilty of that too…not purposefully keeping my husband out of the loop, but it just sort of happens. I’m not comfortable not being at appointments and tests and such…and someone has to take care of the other child at home…so by default, he has less to do with that sort of stuff.
He is “in charge” of the dentist appointments, and my older daughter’s psych appointments…I handle all the asthma/gastro/testing appointments.
I wonder, if your mom had worked full time, whether it would have been different…if they would have split care evenly, or if your mom would have still been in charge?
SnjMom & Kelley–I don’t post much about my frustration over returning back to work b/c I know it’s a problem I’m lucky to have–parents like you, who are doing it alone in every way, have my deepest respect and admiration. Kelley, I’m sure it takes more than half –WAY more–her bravery to do it in your own. You guys are amazing.
Thanks everyone. I’m in a “hostile work environment” for more reasons than just this topic. My boss handles the legal complaints for the company and we are under the HR Dept. I tried going to HR once and it back fired. Being a single mom, and no other income I try to make peace.
Kelley, I know how you feel. I don’t have much of life but my AG and work. I wish you all the luck!