Tuesdays are Your Turn – First Flare and Diagnosis Age
Remember all the excitement about the year 2000?
No, I don’t mean the Y2K bug and the conspiracy theorists, although those are both fun to remember. I’m talking about how New Year’s Eve loomed large in 1999 and how it felt to be alive, waiting for the next millennium to roll in.
That New Year’s ended up chaotic and frenzied for us, but not in the entertaining way. My asthma kid was a month or so away from her first birthday then, and we’d originally had big plans, a babysitter, and tickets for a big bash at a beach resort in St. Petersburg.
Instead, that night our 10 month-old spiraled down into what would prove to be her first acute flare, and we watched 1999 turn into 2000 across the waiting area of the All Children’s Hospital emergency room, on the little portable TV at the nurse’s station.
So we had a more auspicious start to the new millennium than I’d like, and that night seriously set the tone for the entire decade to follow, but my daughter’s New Year 1999 flare also mapped out a very clear path of the progression from first major flare all the way to diagnosis.
She flared badly several more times over the next year, all misdiagnosed as pneumonia or bronchiolitis, until a new pediatrician heard her history when she was two years-old. He tracked down her ER records and x-rays and diagnosed reactive airway disease and “possibly” asthma, depending on how her lungs acted (or reacted, I should say) as she grew older.
We all know how that “possible” part turned out.
What age were you/your kid diagnosed?
Related, if you can pinpoint it, what age was your first major flare?
It’ll be interesting to see your own paths between first flare and final diagnosis.